PACSOI: connecting health data for improved patient outcomes and preventive care
PACSOI: connecting health data for improved patient outcomes and preventive care
Health data remains fragmented across clinical systems, mobile apps, and wearable devices, making coordinated and informed care more difficult. With the PACSOI project, we are working to bring these sources together securely while giving patients control over who can access their data.
PACSOI: connecting health data for improved patient outcomes and preventive care
Health data remains fragmented across clinical systems, mobile apps, and wearable devices, making coordinated and informed care more difficult. With the PACSOI project, we are working to bring these sources together securely while giving patients control over who can access their data.
Today, healthcare data is trapped in silos. Clinical records are stored within healthcare systems, information about diet and exercise may be collected through mobile apps while wearables collect physical health data.
This fragmentation makes it difficult for healthcare professionals to build a complete picture of a patient’s health, coordinate care across providers, and make well-informed diagnoses. It also limits the ability of clinicians and researchers to combine diverse data sources to improve patient outcomes, support preventive care, and advance clinical and population health research.
For patients, fragmented data makes it more difficult to understand and manage their health. This is especially challenging for people with chronic or complex conditions who receive care from multiple healthcare providers.
PACSOI (Patient-Centric Solid Pods) is a two-year research project that began in June 2024 and explores how Solid Pods, which function as secure, patient-controlled personal data vaults, can bring together health data from different sources. Patients decide who can access their information and when, enabling a more complete view of the patient journey while supporting privacy-preserving analytics for the secondary use of health data.
To achieve this, PACSOI is developing innovations in 5 areas:
- Data integration – transforming multimodal health data into interoperable Linked Data.
- Storage optimization – ensuring efficient, scalable, and transparent data retrieval.
- Privacy & security – advancing encryption and privacy-preserving methods.
- Dynamic consent – creating a legal framework and policy language for patient-driven control.
- Analytics & insights – enabling real-time, privacy-preserving health insights across distributed data.
PACSOI will bring these innovations together in a proof of concept focused on the obesity patient journey. The project will integrate data from 12 different sources for 200 patients.
PACSOI is an imec.icon research project supported by imec and Flanders Innovation & Entrepreneurship (VLAIO). The project brings together digital health companies (Byteflies, MoveUp), legal experts (Acontrario), secure storage and integration specialists (FAQIR Institute & Foundation), and three leading research groups (IDLab DISCOVER, KNoWS, PREDICT). A diverse user committee provides guidance, real-world data, and use case validation.
“With PACSOI Byteflies will showcase how real-world (streaming) data obtained via remote patient monitoring augmented by longitudinal data from multiple other sources can help patients and caregivers get better care.”
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Today, healthcare data is trapped in silos. Clinical records are stored within healthcare systems, information about diet and exercise may be collected through mobile apps while wearables collect physical health data.
This fragmentation makes it difficult for healthcare professionals to build a complete picture of a patient’s health, coordinate care across providers, and make well-informed diagnoses. It also limits the ability of clinicians and researchers to combine diverse data sources to improve patient outcomes, support preventive care, and advance clinical and population health research.
For patients, fragmented data makes it more difficult to understand and manage their health. This is especially challenging for people with chronic or complex conditions who receive care from multiple healthcare providers.
PACSOI (Patient-Centric Solid Pods) is a two-year research project that began in June 2024 and explores how Solid Pods, which function as secure, patient-controlled personal data vaults, can bring together health data from different sources. Patients decide who can access their information and when, enabling a more complete view of the patient journey while supporting privacy-preserving analytics for the secondary use of health data.
To achieve this, PACSOI is developing innovations in 5 areas:
- Data integration – transforming multimodal health data into interoperable Linked Data.
- Storage optimization – ensuring efficient, scalable, and transparent data retrieval.
- Privacy & security – advancing encryption and privacy-preserving methods.
- Dynamic consent – creating a legal framework and policy language for patient-driven control.
- Analytics & insights – enabling real-time, privacy-preserving health insights across distributed data.
PACSOI will bring these innovations together in a proof of concept focused on the obesity patient journey. The project will integrate data from 12 different sources for 200 patients.
PACSOI is an imec.icon research project supported by imec and Flanders Innovation & Entrepreneurship (VLAIO). The project brings together digital health companies (Byteflies, MoveUp), legal experts (Acontrario), secure storage and integration specialists (FAQIR Institute & Foundation), and three leading research groups (IDLab DISCOVER, KNoWS, PREDICT). A diverse user committee provides guidance, real-world data, and use case validation.
“With PACSOI Byteflies will showcase how real-world (streaming) data obtained via remote patient monitoring augmented by longitudinal data from multiple other sources can help patients and caregivers get better care.”
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